Desmon and McCoy Rowley, who are they? Desmon and McCoy are siblings that are Crohn's sufferers.
Desmon was still a little girl when she was diagnosed with Crohn's Disease. She was merely 7 years old. She was a very sick child. She had a bowel movement every time that she went to the bathroom. Which could sometimes be up to 8 times a day. She was a very happy and delightful child despite her ailments. Desmon was put on Azathoprine and prednisone. After her body would not respond she was then put on methotrexate.
After no relief, her GI decided it was time to try Remicade. Desmon could not find relief so she was scheduled for a bowel resection. The surgery was then performed to take out some of her infected bowel. She was also given an ileostomy. She recovered ok from her surgery. Unfortunately she would be taken back to the OR for a revision of her stoma due to a blockage under her stomach wall.
That surgery became too much for this little 10 year old. She became septic after her surgery and spent a month in the PICU in Salt Lake City.
She was on a ventilator the month she was in the PICU. By the time she was released from the hospital she would go home with a wound vac., due to difficulties from the surgery which left her with an open abdomen. So the wound vac. was on her stomach. She was also on TPN, so she had a central line. She was very small she weighed 21 lbs when she was discharged. So for extra nutrition measures she had a NJ Tube. She was put on Humira sub q. after leaving the hospital. She stayed positive through her journey, life of a "Crohn's Patient".
That same year though this poor sweet child was diagnosed with AML. They called it a secondary diagnosis.
While this sweet girl was in the hospital now 11 undergoing Chemotherapy her brother, McCoy, was taken to the ED. He had a ct scan and was also diagnosed with Crohn's Disease. McCoy would then have a bowel resection also. They removed a blockage from his small intestine which lead to a removal of 18-24 inches. McCoy was a very strong boy. He was discharged from the hospital after a short stay of only 5 days. McCoy was then put methotrexate sub q. This seemed to relieve McCoy of any symptoms. However, the only thing that seem to help his sister was the chemo for her AML.
Luckily Desmon's Crohn's was knocked into remission. She felt the best she ever had. She did well through all of her inductions. She was released from the hospital after 8 months of treatments. She was released at the end of July and relapsed in August. Desmon then passed away from AML on September 20, 2010. Her brother is still fighting to live a comfortable life. McCoy is still on methotrexate and seems to be doing well.
Together we can find a treatment that will improve the life of Crohn's sufferers. To better treat people, we must first understand the disease better. In order to do this we need additional funding for clinical trials. Please help spread the word of Crohn's and Colitis. Thank you!