Huntington’s Disease (HD) is an inherited brain disorder
that results in the progressive loss of both mental faculties and physical
control. Symptoms usually appear between
the ages of 30 to 50, and worsen over a 10 to 25-year period. Ultimately, the
weakened individual succumbs to pneumonia, heart failure or another
This year was our first time participating in Racing 4 Research with the
Children’s Tumor Foundation. We had the opportunity to attend the
Rolex 24 hour race in Daytona. It was an amazing weekend full of
exciting events for all of us.
This year was our first time participating in Racing 4 Research with the Children’s Tumor Foundation. We had the opportunity to attend the Rolex 24 hour race in Daytona. It was an amazing weekend full of exciting events for all of us.
Matt and I had an incredible time meeting all of the new families and reconnecting with the ones we have met from previous events.
The kids thoroughly enjoyed seeing the drivers and the CTF car up close and personal. We loved being able to find Kendall’s name on the car. Braden took the honors of signing her autograph next to her name. He, along with the rest of the kids, enjoyed pushing the car out of the garage to the starting line.
The drivers were so personable and interested in meeting the families and the NF heroes. There were many opportunities to get autographs or pictures with each driver. It was very much a “CTF team” attitude. We also had fun looking for other famous drivers that took part in the race.
The part of the weekend that meant the most to me was seeing our son meet other kids living with NF. He is only used to hearing that his sister has it. Over the weekend, he bonded with so many children that are living happy lives, that I think it minimized his fear of what his sister is battling.
We left Daytona knowing that next January cannot come soon enough.
All of us had an amazing time thanks to all of the CTF staff that spent so much time planning each and every detail. I left with the overwhelming feeling that we are never in this fight alone. I know that while we are sitting through each surgery or scan with our daughter, there is a team of people who are still fighting hard for her future.
We are accelerating progress against cancer in every community by saving lives, helping those touched by cancer, and empowering people to fight back against cancer.
(Participates in the Combined Federal Campaign only).