When
the Cystic Fibrosis Foundation was established in 1955, children with cystic
fibrosis (CF) rarely lived long enough to attend elementary school. Due in
large part to the CF Foundation's aggressive investments in innovative research
and comprehensive care, many people with the disease can now expect to live
into their 30s, 40s and beyond.
As Jhoanna Galut began to approach her 6th birthday, she had little to
celebrate. The 4th of 6 children born to a poor family living off $2 a
day, Jhoanna suffered from a unilateral cleft lip as well as asthma. Her
asthma turned out to be almost as much of a curse as her cleft lip.
Jhoanna’s
asthma and very thin frame caused her to fail to pass the medical
examination during a free cleft surgery camp organized by an army unit.
As Jhoanna Galut began to approach her 6th birthday, she had little to celebrate. The 4th of 6 children born to a poor family living off $2 a day, Jhoanna suffered from a unilateral cleft lip as well as asthma. Her asthma turned out to be almost as much of a curse as her cleft lip.
Jhoanna’s asthma and very thin frame caused her to fail to pass the medical examination during a free cleft surgery camp organized by an army unit. The cancellation of her surgery at the camp, sent her family into despair. Things only got worse when she got older and local kids began to make fun of her cleft. Perhaps saddest of all, it wasn’t just school kids who made fun of Jhoanna — her mother frequently got into fights with her neighbors over Jhoanna’s cleft.
One day, Jhoanna’s mother brought her youngest child to the hospital for a check up and found literature about Smile Train’s free cleft surgery program at Philippine Band of Mercy. Her hope returned, and when they arrived home, they packed their backs immediately.
Jhoanna had grown strong enough to pass the medical examination and finally received free cleft lip surgery at the hands of Dr. Gilbert Esquejo of Philippine Band of Mercy. With her bright new smile, Jhoana is anxiously looking forward to school and hopes to one day become a teacher.
The Foundation helps people take greater control of their Arthritis by leading efforts to prevent, control and cure the nation’s number one cause of disability.