Hemophilia is a genetic bleeding disorder that prevents the blood from clotting normally. The main symptom is uncontrolled, often spontaneous bleeding. Internal bleeding into the joints can result in pain, swelling and, if left untreated, can cause permanent damage. Hemophilia occurs in 1 of every 5,000 male births, and there is currently no cure. The worldwide incidence of hemophilia is estimated at more than 400,000 people – but approximately 70% of people around the world do not have access to treatment.
On April 17, Community Health Charities joins member charities National Hemophilia Foundation to recognize World Hemophilia Day which is celebrated around the world to increase awareness of hemophilia and other inherited bleeding disorders. The hope is to “Close the Gap” of care around the world and work toward a day when treatment will be available for all globally.
With help from the National Hemophilia Foundation, we are fortunate to have many resources and services available to hemophilia patients:
- Do the 5! – These five key strategies help people with hemophilia live longer, healthier lives.
- Find a Chapter – A complete listing of National Hemophilia Foundation chapters nationwide.
- Steps for Living – Created by parents, patients and healthcare professionals, the Steps for Living web site provides information and resources to help your family deal with the daily challenges of living with a bleeding disorder. There is information and activities for all age groups.
- Victory for Women – A special health initiative to address the critical issues faced by women with bleeding disorders.
- Diversity Outreach – Committed to reaching culturally diverse groups across the United States.
- Scholarships – Numerous scholarships are available for hemophilia patients.
- Publications – Informative resources for people with bleeding disorders and their families, these publications are also of use to healthcare providers, educators, librarians and other healthcare organizations.
To learn more about hemophilia and the National Hemophilia Foundation, please visit www.hemophilia.org.
Source: National Hemophilia Foundation
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