Hospice care is an end-of-life care that seeks to provide comfort and support – not only to the patient, but to the family as well. It is not a hospital bed surrounded by tubes and monitors. It is an environment where family members can sit with their loved one, and where patients are cared for not only physically but also emotionally.
Hospice care focuses on pain management and comfort measures, rather than curative medicine. This care is delivered through a team-oriented approach of expert medical care, pain management and emotional/spiritual support expressly tailored to the patient's wishes. The National Hospice and Palliative Care Organization (NHPCO), a proud member of Community Charities, is essential to this type of care.
Kate Adamson has something important to say to stroke survivors and their families. And a large part of her message is how she is now able to say anything at all. In 1995, at the age of 33, Kate’s life seemed totally in control. A New Zealand native, she was living the American dream — a five bedroom house in a Southern California beach town, a loving husband and two healthy and happy young daughters. She exercised regularly, watched what she ate, and was about to start a personal training business. One day she suddenly felt dizzy. She lost focus and balance. Within minutes, she was unable to speak or move.
Kate Adamson has something important to say to stroke survivors and their families. And a large part of her message is how she is now able to say anything at all. In 1995, at the age of 33, Kate’s life seemed totally in control. A New Zealand native, she was living the American dream — a five bedroom house in a Southern California beach town, a loving husband and two healthy and happy young daughters. She exercised regularly, watched what she ate, and was about to start a personal training business. One day she suddenly felt dizzy. She lost focus and balance. Within minutes, she was unable to speak or move. Doctors and nurses worked on her body, but didn’t speak to her. She tried to talk. She tried to move. She felt pain, and tried to scream. Nothing happened. Kate was in a living nightmare — totally awake and aware, yet trapped in her own body. No one knew that she was still able to think and yes, to feel pain. The doctors inserted a breathing tube and a feeding tube, without giving her adequate pain killers. No one told her what was going on. Everyone assumed she couldn’t understand. Kate did understand two very important things: she was in serious trouble, and she had to find a way to connect with the outside world in order to survive. Kate was lucky, she reports. “People from my church were there. My husband Steven was at my side every day, talking to me, trying to make contact. I watched as he fought with our insurance company over the phone, insisting I could make progress from what seemed an impossible condition.”
Kate eventually learned she had suffered a double brain stem stroke — and that any kind of progress was far from certain. The brain stem is the area of the brain that controls body functions such as breathing, blood pressure, heartbeat, eye movements and speech. A brain stem stroke is usually fatal. Steven closed his law practice for five months, completely devoting himself to the hope of his wife’s recovery. That hope was rewarded in a small but very surprising and heroic way. “I discovered I could blink,” said Kate. “I realized that if I could blink, I could ‘talk’ to other people. I wasn't completely helpless. In that moment, an entire world of possibilities opened up to me.”
Her progress started with baby steps. “I focused on little goals, not the big picture,” she said. “I just asked God to give me the strength to get me through what I had to face each day. I couldn’t allow myself to look back on what I’d lost, or to worry about the future.” Three months later, her focus and determination paid off. Kate had recovered enough to return to her family, in a wheelchair. “I wanted to have it all back, to go home walking,” says Kate. “And it was then that I learned another important lesson.” “There is a secret to recovery from stroke or any other major life problem: Willingness. Willingness to face the facts of what is happening today, and in spite of that, to have the stubborn willingness to continue to fight.”
Ten years after her stroke, Kate is a professional motivational speaker, an award-winning author, and champion of the possibility of positive change. “Near the end of my hospital treatment, and long before my life had any chance of becoming ‘normal,’ my husband and I decided this struggle, this journey, was much more important than just my recovery,” said Kate. And this is where Kate points the way to life-long purpose, happiness and satisfaction for herself and other stroke survivors. “The key is to find the value in helping others.” Kate admits it’s a leap of faith for everyone struggling with their own challenges. “Again the answer comes from willingness — the willingness to understand that helping others is the best way to help yourself.” Kate’s first effort was starting a stroke recovery support group, “Back on Track,” with the Southern California chapter of National Stroke Association. “I was amazed that I’d actually pulled it off,” said Kate. “I never had anyone tell me I could do anything that mattered when I was growing up.”
Kate went on to write the book, “Kate’s Journey,” and to appear twice before joint sessions of Congress and on multiple national television and radio broadcasts. She also speaks to conventions, churches and civic groups. “I know it’s a gift to be able to speak again at all,” said Kate. “It isn’t always comfortable. Even now my body will tense up and sometimes an arm will suddenly fly out when I’m in the middle of talking in front of strangers.” But Kate understands the only thing that’s really important is the message. “Everyone has a disability. Some of them are visible, some aren’t. It’s all about what we can do, not what we can’t,” she said. Her final message? “Do whatever it takes to keep you inspired. Don’t isolate yourself. Pick up that fifty-pound telephone and ask someone else, ‘What can I do for you?’” “Pretty soon you’ll realize that while every day isn’t a great day, every new day offers possibilities you never would’ve imagined.”