$25 provides Lupus Now magazine to a physician’s office for one year so individuals seeking care can learn about lupus and resources available to them.
$50 provides 100 informational brochures for a local health fair so community residents can learn about lupus, its symptoms and health effects.
$100 provides telephone helpline reference books for a local community hotline service to provide individuals answers and resources to help them learn about lupus and cope with the disease.
$250 provides training for an individual to serve as leader of a community-based lupus support group for individuals who are newly diagnosed with lupus and their family members.
$500 provides information packets to 100 individuals who call the Lupus Foundation of America information helpline seeking to learn about lupus.
$1,000 provides an online webinar that enables individuals with lupus around the world to learn from lupus experts.
$2,500 provides a summer fellowship for a post graduate medical student to work with an established lupus investigator.
$5,000 provides a continuing medical education program session for local physicians on the diagnosis and treatment of lupus.
$10,000 supports a lupus researcher for one month to search for the causes and cure for lupus.
support of The Advertising Council’s multi-media lupus awareness campaign,
which generated nearly $10 million in donated media during 2011, and a total of
$70 million since the launch of the campaign in 2009.The LFA is the
Founding Partner on the campaign sponsored by the U.S. Department of Health and
Human Services Office on Women’s Health (OWH).
• Reached more than 71
million people through the media, which showcased personal stories and
demonstrated the urgent need for a full arsenal of new, safe, effective, and
more tolerable treatments for lupus. Launched Lupus Voices Across America, a
new Web site to provide a community for people with lupus and supporters to
tell their stories and give a voice to their experience. More than 1,200 people added their voices,
and their stories were shared with more than 32,000 individuals through the Web
tremendous growth through our Web site and social media, generating nearly 4
million visits to our Web site. The LFA
Web site is ranked number one, compared to other Web sites for people looking
for information about lupus. Twitter
followers increased 270 percent and the number of Facebook fans increased by
175 percent, and continues to grow.
• Awarded research
grants to advance the science and medicine of lupus in the areas of pediatric
lupus, lupus nephritis, cutaneous lupus,
adult stem cells, mid-to-late stage translational, and male lupus. Visit the LFA's
National Research Program(www.lupus.org/research)
for a complete list of 2011 award recipients.
Since its inception, the LFA has provided nearly $24 million to more
than 400 investigators at 100 institutions.
• Secured a journal
publication of the first-ever global consensus definition of a lupus flare,
which will provide more precise measurement over time of treatment
effectiveness, and will improve the design of future lupus clinical trials. The
Lupus Foundation of America Flare
Definition (LFA-FLARE), was developed through a multi-year, international
collaborative effort led by the LFA.
• Expanded training of
clinical investigators on standards to interpret and utilize diagnostic instruments
commonly used in lupus clinical trials.
More than 2,500 researchers and investigators in 53 countries have
registered with the online portal, Lupus Foundation of America Professional
Online Instrument Training Program (LFA POINT Program), and the program
continues to grow.
• Secured through
Congress an additional $4.4 million in Fiscal Year 2012 for the National Lupus
Patient Registry under the direction of the Centers for Disease Control and
Prevention (CDC). The study will provide a more accurate estimate of the number
of people with lupus in the United States and the burden of disease on
individuals and their families. To date, Congressional support for the study is
more than $22.9 million.
• Generated more than
2,500 phone calls, e-mails, and visits to Members of Congress through the Lupus
Foundation of America's Thirteenth Annual Advocacy Day. Advocates urged support
for increased federal funding to bridge the gaps in lupus research, awareness,
• Stimulated $2.4
million for lupus research through the U.S. Department of Defense (DoD)
· Directed Peer
Reviewed Medical Research Program (PRMRP). Since 2005, more than $11.9 million
has been awarded to support important lupus research studies.
meetings with key officials at the National Institutes of Health (NIH), Centers
for Disease and Control and Prevention (CDC), U.S. Food and Drug Administration
(FDA), and with Members of Congress to educate policy makers on the needs of
people with lupus. The LFA also recruited individuals with lupus and their
family members to testify on the critical need for an arsenal of treatments for
lupus during an FDA Advisory Committee hearing on a potential new treatment for
Education and Support
education, support, and referrals to approximately 200,000 individuals through
outreach and education efforts, including sponsoring more than 200 support
groups and conducting more than 400 patient education programs.
the national education program, Lupus: Learn from the
Experts™, as a series of
telephone conferences hosted by leading lupus experts that cover topics of
interest to people at different points in living and coping with lupus. The
2011 series addressed the following topics: clinical trials, kidneys and lupus,
central nervous system involvement, Social Security Disability Insurance and
parents caring for children with lupus.
135,000 copies of our award-winning magazine LUPUS NOW® to
individuals with lupus and their families, policy makers, and health
professionals. LUPUS NOWcontains the
latest information on clinical research and coping strategies.