National Hemophilia Foundation
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.
Hemophilia Foundation is dedicated to finding better treatments and cures for
inheritable bleeding disorders and to preventing the complications of these
disorders through education, advocacy and research.
Your support enables us to
fund vital research and provide key educational programs and public policy
initiatives to help people with bleeding disorders such as hemophilia and von
Career Development Awards promote research endeavors of established
investigators and are awarded to scientists conducting basic, pre-clinical and
clinical research. NHF has granted 23 Awards since 2000.
Clinical Fellowships exclusively sponsored by Baxter Bioscience
is provided to physicians who are interested in the sub-specialty of bleeding
disorders treatment. 24 fellowships have been awarded since 2003 and will
provide the future of physicians caring for people with hemophilia.
Graham Pool Postdoctoral Fellowships are awarded to scientists who have
recently completed a doctoral, postdoctoral or residency training program.
Their research is focused on biochemical and genetic aspects of bleeding
disorders and provides funding to ensure the interest and future of researchers
in bleeding disorders. 76 researchers have been awarded fellowships since 1972.
- The state
advocacy team has participated on various panels aimed at educating consumers
and providers about the Affordable Care Act (ACA) and how it may impact those
with bleeding disorders. These trainings reached consumers in more than 15
states, including but not limited to Indiana, Nebraska, Idaho, South Carolina,
Texas, Florida, Washington & Oklahoma.
- The NHF Insurance
& Reimbursement Conference is designed to educate social workers and key
insurance advocates about issues surrounding insurance and reimbursement in
both the private and public payer markets. More than 55 participants attended
this conference in 2011.
- The state
advocacy team created a "Personal Health Insurance Toolkit" designed
to assist consumers in evaluating their health insurance options. The toolkit
is comprised of a glossary of health care terms, Health Plan Comparison Guide,
Health Plan Comparison Worksheet and a Personal Health Stat Sheet. The toolkit
was rolled out to NHF chapter leaders at a series of regional trainings. 48
chapters were provided with training on the use of the toolkit.